Sjögren's India (SI),
managed by patient volunteers, is dedicated to enabling patients and
their families to 'Live Well with Sjögren's Syndrome (SS)'. SI works through
local groups called Sjögren's
Support Group (SSG) for empowering patients through education,
creating better public awareness and providing a forum for interaction with
healthcare professionals. Support in terms of counseling,
lifestyle management tips etc. is extended to patients/families through
personal/group, telephonic and virtual interaction. SI is inspired by
the Sjögren's
Syndrome Foundation (SSF) in USA.
Objectives
- To
create awareness about Sjogren’s syndrome (SS) among patients, healthcare professionals and the general community.
- To
provide a platform for patients and their families to share their experiences
and extend care and support to each other.
- To
provide opportunities for patients to interact with multi-specialty doctors for
a better understanding and management of the multi-system manifestations
- To
develop educational resources in Indian languages for Patient education.
- To
facilitate scientific research by creating links between patients and Research
Scientists.
- To
take up advocacy issues related to healthcare management of SS.
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